Resource Guides

Fact Sheets Guide from the Spina Bifida Association www.spinabifidaassociation.org

Topics:

Spotlight on Spina Bifida

Agent Orange Benefits Act

Depression and Anxiety in Individuals with Spina Bifida

Educational Issues Among Children with Spina Bifida

Folic Acid

Genetics and Spina Bifida

Hip Function

Hydrocephalus and Shunts in the Person with Spina Bifida

Latex (Natural Rubber) Allergy in Spina Bifida

Latex List

Learning Among Children with Spina Bifida

Lipomas and Lipomyelomeningoceles

Medical Considerations for Therapeutic Riding with Spina Bifida

Obesity

Precocious Puberty

Spina Bifida Occulta

Symptomatic Chiari Malformation

Tethering Spinal Cord

Toilet Training the Child with Spina Bifida

Transitioning Urologic Care

Transitions into Adolescence

Travel with a Disability: Easier than Ever

Urologic Care and Management

Newsletters Guide
Pathways – Hydrocephalus Association
Winter 2009

Resource Manual for Onondaga and Surrounding Counties
Exceptional Families Resources 2002-2004

Disability Resource Guide Greater Rochester Area
Parent-Educator Resource library Monroe#1 BOCES Revised 2006

Human Resource Directory
Cayuga, Chemung(website only), Ontario, Schuyler, Seneca, Steuben (website only), Tioga (website only), Wayne, Yates (website only)
Compiled by RCIL

Volunteer Opportunities Guide
Greater Rochester Area
Compiled by RCIL

New Families Folder
Compiled by RCIL
Includes National Information Center for Children and Youth with Disabilities fact sheets, A Parent’s Guide to Assessing Programs for Infants, Toddlers and Preschoolers with Disabilities, and other local resources for support