Local New York Spina Bifida Resources

Non-Profit Organizations and Associations:

Easter Seals - Western Region
103 White Spruce Boulevard Rochester, New York 14623
Phone: (585) 292-5831 (Residential);
(585)292-5830 (Diagnostic Treatment Center)
Fax: (585) 292-9697
Office hours: 8:00 am to 5:00 pm
http://ny.easterseals.com/site/PageServer?pagename=NYDR_homepage

Spina Bifida Association of WNY
137 Warner Avenue, North Tonawanda, NY 14120
Email: info@sbawnt.org
Phone: (716) 446-5595

GRSBA Greater Rochester Spina Bifida Association
Amy Faes - Chair
PO Box 3
Fairport, NY 14450
Phone: 585.388.7450
http://www.sbonlineroc.org/contactUs.html

Clinics and Medical Support:

Robert Warner Rehabilitation Center
Spina Bifida Center of Western New York
219 Bryant
Buffalo, NY 14222
Phone: 716-878-7598
Web site: http://www.wchob.org

Strong Memorial Hospital
Andrew J. Kirch Developmental Services Center
601 Elmwood Avenue, Box 671
Rochester, NY 14642
Phone: 585-275-2986
Web site: www.stronghealth.com

SUNY Upstate Medical University Hospital
Spina Bifida Program/Neurodevelopmental Pediatrics
725 Irving Ave.
Suite 112
Physicians Office Bldg.
Syracuse, NY 13210
Phone: 315-464-5259
Web site: http://www.upstate.edu/gch/services/programs/spina.php

THE TRAID-IN EQUIPMENT EXCHANGE PROGRAM
If you have questions or need additional information please call us at 1-800-624-4143 (Voice/TTY/Spanish)
or email us at webmaster@cqcapd.state.ny.us.
http://www.cqcapd.state.ny.us/AssistTechTraid/traidintro.htm

Center for Assistive Technology, University at Buffalo
Sumana Silverheels
Room 206A Kimball Tower
Buffalo, NY 14214-3079
Phone: (716) 829-6712 (voice/TTY), or (800) 628-2281 (voice/TTY)
http://cat.buffalo.edu/traid/

NYS TRAID Project Commission on Quality of Care and Advocacy for Persons with Disabilities
One Empire State Plaza, Suite 1001
Albany, New York, USA 12223-1150
Phone: (800) 522-4369 (voice/TTY) , or (518) 474-2825 (voice), or (518) 473-4231 (TTY)
Fax: (518) 473-6005