“An Introduction to Spina Bifida”
David G. McLone & Joy Ito
Children’s Memorial Spina Bifida Team
Chicago, IL 1998
Resource for parents and family members about the issues a child with spina
bifida may have and how they are treated.
“Answering Your Questions About Spina Bifida”
The Spina Bifida Program,
Department of General Pediatrics,
Children’s National Medical Center for Disability Rights Inc. Washington, D.C.
2003
An overview of Spina Bifida including medical and non-medical issues in a question
answer format. (Also available in Spanish)
“Bowel Continence and Spina Bifida”
Susan Leibold, Pat Braun, Jeanne Cole & Paula Peterson
Edited by Janetter Henry-Atkinson
Spina Bifida Association of America
Washington, D.C. 1995
Reader friendly information on Bowel continence and its management.
“Confronting The Challenges of Spina Bifida: A Group Curriculum Addressing
Self-Care, Self-Esteem and Social Skills In 8 to 13 Year Old Children”
Bonnie E. Engelman, James W. Loomis, & Lucretia Klieback
Newington Children’s Hospital
Newington, CT 1994
Instructional manual for professionals to teach parents and family members about
Spina Bifida and Pre-teens.
“Evidence-Based Practice in Spina Bifida: Developing A Research Agenda”
Spina Bifida Association of America
Washington, D.C. 2003
Compilation of the research findings from the May 9-10, 2003 Washington Court
Hotel Symposium
“Infants and Toddlers with Spina Bifida: A Resource Guide for Parents”
Linda J. Burdet
Development made possible by a grant from the Finger Lakes Developmental Disabilities
Service Office
Spina Bifida Resource Center 2003
Overview of Spina Bifida and area resources and supports In Western and Central
New York
“Living Well with Spina Bifida: Newborn to Age 2”
Spina Bifida Association
Washington, D.C.
Easy to read first resource for parents and family members of newborns and infants
“Responding to the Educational needs of Students with Spina Bifida”
Linda J. Burdet Development made possible by a grant from the Finger
Lakes Developmental Disabilities Service Office
Spina Bifida Resource Center 2003
Overview of learning issues that are typical of children with Spina Bifida
“Social Development and the Person with Spina Bifida”
Donald J. Lollar
Spina Bifida Association of America
Washington, D.C. 1994
Ways to support the social development of a child with Spina Bifida